Kurzfassung

Patients with hematological malignancies undergo hematopoietic stem cell transplantation (HSCT) as a potentially curative approach for an otherwise fatal disease. Most of treatment related deaths occur after intensive and protracted treatment and after less and shorter stays in hospice compared to other patient groups. Despite high mortality only a minority of HSCT patients have a written advance directive or power of attorney. The aim of this study is to explore the patients’ attitude,...Patients with hematological malignancies undergo hematopoietic stem cell transplantation (HSCT) as a potentially curative approach for an otherwise fatal disease. Most of treatment related deaths occur after intensive and protracted treatment and after less and shorter stays in hospice compared to other patient groups. Despite high mortality only a minority of HSCT patients have a written advance directive or power of attorney. The aim of this study is to explore the patients’ attitude, motivation and experiences towards advance care planning (ACP) in the context of hematopoietic stem cell transplantation (HSCT) in Germany. We use purposive sampling in cooperation with a local HSCT department, and self-help NPO including the European Bone Marrow Transplantation Patient & Family Day 2019 in order to conduct interviews and thematically analyse accounts of patients and families (incorporating the ‘framework’ approach).» weiterlesen» einklappen