Register für pädiatrische myeloproliferative Neoplasien
Laufzeit: 01.01.2023 - 31.12.2029
Kurzfassung
National multicenter observational registry
To determine the incidence and epidemiology of classical MPN, PV, ET and PMF as well as pHES in children and adolescents through systematic inclusion of these patients in a national population-based registry
• To systematically characterize clinical, hematologic, genetic and cytogenetic features of children and adolescents with PV, ET, PMF and pHES
• To identify pediatric patients with MPN and high risk of complications and disease progression and...National multicenter observational registry
To determine the incidence and epidemiology of classical MPN, PV, ET and PMF as well as pHES in children and adolescents through systematic inclusion of these patients in a national population-based registry
• To systematically characterize clinical, hematologic, genetic and cytogenetic features of children and adolescents with PV, ET, PMF and pHES
• To identify pediatric patients with MPN and high risk of complications and disease progression and transformation into acute myeloid leukemia (AML)
• To improve the therapy for children and adolescents with MPN by discussing treatment options with the treating centers and tailor therapy to the specific and individual needs of pediatric patients» weiterlesen» einklappen