Kurzfassung

Prospectively register all newly diagnosed patients (children, adolescents, and young adults) with soft tissue tumours with the following aims:
Primary objectives:
Collect information about incidence of different types of soft tissue tumours as a rare disease
Assess the quality of treatment by the means of data collection, data check and an advisory service provided by the registry and the CWS reference centres.
Collect prospectively information on epidemiologic, diagnostic, molecular,...Prospectively register all newly diagnosed patients (children, adolescents, and young adults) with soft tissue tumours with the following aims:
Primary objectives:
 Collect information about incidence of different types of soft tissue tumours as a rare disease
 Assess the quality of treatment by the means of data collection, data check and an advisory service provided by the registry and the CWS reference centres.
 Collect prospectively information on epidemiologic, diagnostic, molecular, clinical and treatment data of patients with STS and other soft tissue tumours to determine whether a relationship exists between outcomes and specific characteristics
 Collect survival data including long-term follow-up and therapeutic responses to local and systemic therapies
 Create a database for the reassessment of the present therapy stratification system and find new risk factors by the linkage of biological information to long-term outcome» weiterlesen» einklappen