Kurzfassung

The iEwingRegistry is a joint registry of European and other international Ewing sarcoma study groups. Patient resources for Ewing sarcoma research are limited. Follow-up of current primary clinical trials terminates after trial close. The biology of Ewing sarcoma is still under dynamic evolution. To maximize efforts in Ewing sarcoma research, iEwingRegistry will collect data for analysis of long-term follow-up, data from patients outside of clinical trials, and biomaterial from these...The iEwingRegistry is a joint registry of European and other international Ewing sarcoma study groups. Patient resources for Ewing sarcoma research are limited. Follow-up of current primary clinical trials terminates after trial close. The biology of Ewing sarcoma is still under dynamic evolution. To maximize efforts in Ewing sarcoma research, iEwingRegistry will collect data for analysis of long-term follow-up, data from patients outside of clinical trials, and biomaterial from these patients to be used for ancillary studies.
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